Friends of Zachary,
I’m happy to report this past week, Zachary had a positive check-up at NYU Langone Medical Center. He seems to be responding well to the two newly introduced drugs. We are seeing little to no side effects. More importantly, he was finally tapered off the Decadron steroid which has significant side effects and complications if used on a long-term basis.
We also had his five-month scan this past weekend. I am happy to report there continues to show signs of necrotic tumor (dying tumor cells). I’m am also happy to report the scans showed no growth beyond its original size from early August.
As a practice, MRI scans continue to be an art in themselves as interpreting them properly comes with great skill. Growth can be confused with post radiation swelling, necrosis can be misinterpreted for live tumor. A true way to determine if someone is doing well or not is by their physical and mental state.
Zachary appears to be improving all all levels. We will also start intensive Physical and Occupational Therapy this week out of Long Island Jewish. This facility specializes in outpatient rehabilitation to help individuals recover from neurological brain trauma. They are very confident their services will provide much needed therapy for Zachary’s recovery.
We continue to monitor his day-to-day progress and constantly seek the newest treatments available. We will schedule his next scan late December or early January.
I want to share a quick Halloween story that needs a personal mention. Zachary was scheduled to be in the city the afternoon many of his friends went trick-or-treating. We arrived home around 5:30 pm to a car full of local friends that wanted to make sure Zachary has a wonderful Halloween experience. Several friends…Zane, Jared, Gabby, Mariana & Haydan were all by his side as they walked from house to house in his NY Cosmos uniform. They all wanted to make sure he had a wonderful Halloween. Thank you to the parents of these remarkable kids who gave up their time to share in Zachary’s Halloween experience.
Our Sincerest Appreciation,
Deena, David, Matthew, Zachary and Molly
“It Takes A Village”