What We Do

What We Do

The Fly A Kite Foundation is dedicated to three main objectives:

1. Creation of Custom Art Packages
The foundation will provide custom art packages for children with pediatric brain cancers. These packages are intended to provide a creative and therapeutic outlet for children suffering from diminished motor function. Research indicates that art therapy can improve the quality of life of those suffering with illness and can even help with healing. That’s why we have partnered with a Neuro-Occupational Therapist who will help design  art packages based on the therapeutic needs of each child. We seek to empower these children with self-expression and show the beauty that can exist, even during difficult times. Art projects created through our foundation will be presented in an online virtual gallery and we anticipate holding a live art show in the future.

2. Funding for Research
The foundation will provide funds for laboratory & medical research, clinical trials and not-for-profit organizations directly impacting the search for a cure for pediatric brain cancers. A team of medical professionals has been selected to serve on our medical advisory board. They will write grant criteria, evaluate requests for research funding and make medical referrals.

3. Providing Parent/Patient Advocacy and Support
The foundation seeks to provide parents of newly diagnosed patients with support and guidance as they try to define and navigate treatment plans. The members of The Fly A Kite Foundation are passionate third parties available to guide, organize, support, listen, identify treatment options, and help bridge communications between family and medical provider.

Explore the links in the menu to learn more about each of these areas of focus and how the Fly A Kite Foundation can help support you or someone you know who is suffering with DIPG.